Friday, November 22, 2024

I Don't Actually Plan These

I don't plan my writing. I should, I know. I have before, of course, but nowadays, I kind of get an idea of what I'm going to write about and just...shoot. It's worked ok, thus far. Sometimes I don't figure out a topic beforehand at all. I very rarely research my topics, either, since the topic is something I'm pretty well versed in, anyway. So often, what you get is a spell checked stream of consciousness. I usually read it over again for the sake of clarity, of course, but mostly what you see is what I've thought out at the time.

All that aside, I can't write all that much for today. I've developed (yet another) issue with the tendons in my right hand, and it kind of hurts to type. Something called DeQuervain's Tenosynovitis is slowing me down. Not sure where it came from, but it could be related to my cane use or phone use (I mean, so much of my life exists on my phone, I use it quite a lot).

After a couple of months of occupational therapy for it, it hasn't improved much, pain-wise. The cortisone shot I received only helped for 4 or 5 days, and using a brace isn't helping, either. So, the next option is surgery to correct it. I meet with the surgeon in December to discuss and then schedule the surgery.

I wish I could say I was taken off guard with this, but I wasn't. You've heard that expression "waiting for the other shoe to drop?" Well, there have been several shoes dropping over the past decade or so. This is just another in the rain of rain boots. 

Which is fine. I suppose. 

I'm trying not to become complacent in the "well everything else has turned out fine" department. That wouldn't do at all. Life is full of surprises, and I am full of life, I guess. I figure at this point life is just throwing me one giant surprise party. Things are just very interesting.

Of course, I sometimes get overwhelmed by one thing or another. The current overwhelming thing isn't fully diagnosed yet, so I can't quite assimilate it. That thing is a couple of weird levels of minerals in my body. 

I think I mentioned collecting -ologists in my last post. Suffice to say, it's an ongoing collection. I've added a nephrologist, who has taken me on as a patient and also referred me to an endocrinologist. I've looked at my file online and saw that the idea of a rheumatologist has been thrown in there. 

It's a lot to handle, but then, it's been a lot to handle for several years now. 

What do you do when this happens? I know I've thought that myself when hearing of other people going through Multiple Big Things at Once. The truth is, apparently you just put your head down and face it like an offensive lineman and try to divert the Big Things.

In short, it's hard, but you deal with each thing as it comes, as put together as you can be. All that said, I have a very good support system. My family members are key in this, as are a few close friends. I have a counselor who I talk to every two weeks. I do have access to occupational, speech and physical therapists.  I have my reasonably well equipped kitchen where I can cook any number of things that will distract me from what may be on my mind. I have video games, books, windows to look out, music to listen to, and people I text or check in with.

There are times when all of those things don't work, of course, and you're left with nothing but your own thoughts. That's when it sucks. There are a lot of people out there in the same or similar circumstances, and of course, most of the outside world doesn't know about it, so they don't realize they could help.

I don't blame people when they don't know about what's going on. I mean, that's my fault. I don't let loose with a whole lot of details about my life. They're still there, though, the details. The things that are on my mind sit there and just weigh my thoughts down. I usually try to get different thoughts under it, more buoyant thoughts, better thoughts. Sometimes it works, sometimes it doesn't.

So pretty much, what happens when life gets overwhelming is, well, we deal with it. Sometimes we deal with it in a healthy way, sometimes we don't. Sometimes we talk about it, sometimes we keep it to ourselves. 

Right now, I just kind of want to spoil myself a bit, you know, get manicures, massages, eat cheesecake. work out, go places, do things, make plans. All sorts of distractions, I know, but who says distractions aren't part of the offensive lineman analogy? I've heard of those guys doing all sorts of distracting things when they're lined up to distract the defense, and when you distract the defense, you can get something out of it. That's what I'm aiming for.

Friday, November 15, 2024

Another day, another eh

 Not sure how to go about writing this one. I guess I'll start with nothing deadly is happening, so that's good. 

Yes, I did knock on wood. No worries there . 

However, I do appear to be keeping up with the unusual theme of my life over the past several years. Nothing solid yet, but I'm currently living the dream of menopausal (post menopausal?) but having to lower my calcium intake.

I don't know how many of you have had to look, but finding suggestions for a lower calcium diet is like finding a specific needle in a haystack full of other similar (yet completely useless needles). 

In short, it's nuts. Oh wait...I can't have many of those. 

Usually, women in my age group need more calcium. People who live at my latitude need to get more vitamin D.

I need to do neither. I have to cut back on my calcium and not take vitamin D. I'm so darned special I could just spit. 

Not really. I don't spit as a rule. 

Figuring out a new diet with weird requirements has triggered a mild panic for me. Before I had the stroke 5 1/2 years ago,  I was on a ridiculously restrictive diet to combat my chronic migraine.

I couldn't eat anything having to do with grapes, had cut out gluten and lactose, cut out all nuts and some legumes, had to avoid highly processed foods, couldn't eat anything past a certain number of days old (and by that I mean 1-2 days, not a week), no dried or preserved foods, couldn't have more than 2 cups of coffee per day, no delli meats, no aged cheeses at all...it honestly went on from that too. Plus, it didn't work. I mean, considering the only thing that stopped the migraines was (plausibly but not confirmed) a hemorrhagic stroke, I guess that's not too surprising in retrospect. 

Whatever the case, it was incredibly difficult to follow, and had the added quality of being useless for me. 

So now, her we are at another weird diet. Calcium is in so many things, in varying amounts. 

This time, what I'm looking at is cutting out most leafy greens, again with the nuts, several cheeses, some fruits, tofu, tempeh, chia seeds and many types of beans. Not to mention most milks currently available.

I mean, meat is ok, so I guess that's nice. I can still use flax seeds. Coconut milk is low in calcium, though I might need to look at the fat content. Thank heavens I can still have dark chocolate. Peanut butter is ok, Brussels sprouts work, sweet potatoes do too. 

It looks like I'll have to go back to Red Pizza (no cheese), and vegan nacho cheese and cheese sauce. 

The thing is, I don't want to figure all of this out. Even my Nutritionist said she needs to look into it to help me figure it out. 

I'm just going to deal with it, I guess, and wait it out until I can get this hypercalcemia thing figured out. Which, of course, means more -ologists to add to my weird medical treatment list. 

I know I'll end up just rolling with it, but it's a burden, nonetheless. Sits pretty heavy on me. I guess I have a week or two to figure it all out.

It's the little things at this point.

Friday, November 8, 2024

Annoyance

Today, I’m irritated.

We get used to certain things as we have as adults. Most of us are able to plan our weeks, plan our meals, plan our recreation, plan for work…. But now I can't. 

I don't drive by myself, so I have to use other options. Some of you may know how irritating it is to have to rely on others for your transportation. It's inconvenient and can really suck. You're stuck at the whims of another person's life or scheduling. You can't just up and get somewhere if you need to. What's important to you, necessary to you, isn't important or necessary to those who schedule or provide your rides. This means that things get messed up. 

For instance, a couple of weeks ago, I was left at a hospital after the hospital changed my appointment time, which obviously affected when I got out. I was going to be a half hour later than I'd scheduled. I called the company that oversees my rides, and they got me mixed up with someone else, apparently telling their driver they were going to be late. So my driver was never told, got there, waited 10 minutes for me and then left. 

The hospital I was at is about a half hour from my home, so it was a little too far to walk. My husband was at work about an hour away, so it was going to be a bit before he was able to pick me up. We worked that out, and he got reimbursed for driving me home, but not for the time it took him to get to where I was from work. 

Recently, I scheduled a ride from my house to another Orthopedics appointment, and then to therapy later that day. They denied it because I didn't schedule my ride home, even though I have a standing order in their system. 

See? Annoying. 

A little over 5 ½ years ago, I would have driven myself to my appointment, driven myself to my next activity for the day, then driven home. I can't do that anymore, I don't have a car and I don't have a very good memory. I do have a license, which is great, of course. It was a huge accomplishment for me, but not being able to get myself to some places is irritating. I can't be independent, and sometimes I can't even go where I need to go. 

All because of the stupid stroke. Honestly it's messed up my life a lot. I’ve lost a lot of ground with it. I mean, not having the migraines is definitely worth it, but I still get uselessly angry at how things have to be now.

Maybe it will improve. Maybe we'll go on another vacation. Maybe we'll even win the lottery. All of those things seem equally far fetched at the moment, however. 

So I'm stuck. I’ve been stuck a lot, it's not a new thing, but it's really annoying just the same. 

All I can do is try to pull myself out of this funk, and I will. Eventually. Time I've got. I just don't have a lot of ways to deal with it.

Changing things up

 I was stuck for a while, trying to figure out what to write about next. I couldn't figure out quite where to go with the blog. I kind o...